Rett Syndrome Research needs help

Very proud of my daughters this week. As some of you will know, one of my daughters has Rett syndrome. It’s a rare chromosomal disorder that basically only impacts girls. (Boys can get it but they usually do not survive long after birth). Girls develop fairly normally up to about 12 to 18 months of age, then regress markedly. As it affects only about 1 in 10,000 girls, it’s not the sort of thing that gets much research funding.

So my other two daughters have decided to raise some funding to help with a local Rett research program. If anyone is interested, you can make a donation directly here: https://www.mycause.com.au/ …/fundraiserforrettsyndromeresea…

Alternately, my youngest daughter is organising a staged musical for early next year (in Brisbane) with all profits again going directly to the Rett research team. I’ll post more about it closer to when tickets for the musical are available.

2014-11-25